Posted by on Jan 4, 2012 in Articles, Blog | 1 comment

A Dad, A Son, and Living With Hemophilia A

Imagine your son, the boy you held in your arms on the day he was born, the boy you always dreamt of buying the uniform with your favorite football team logo, the precious boy you couldn’t wait to see make the game winning touchdown…..being diagnosed with Hemophilia.  That has been my challenge for the past 6 years.  My son, Gabe, is a healthy, very active 9 year old boy.  He has his favorite teams, sports, movies, hobbies and for all intents and purposes lives a normal, 9 year old’s life…except he has mild Hemophilia A.  Hemophilia, in my son’s case, is that he has a Factor 8 deficiency which cause’s his blood not to clot. 
It’s because of this disease that Gabe must always be careful not to get injured or bruised. My heart jumps very time the school calls my, first reaction is my son got hurt and I might have to take him the ER.




My son and I have a great relationship and my daily joy is being a dad.  I have 2 other children, daughters, who are not Hemophiliacs but one of them is a carrier and she could pass it on to one of her sons or more. We do family things together such as camping, theme parks, we play board games, watch movies etc..  It’s those times when my son will watch other boys his age playing football or even his own sisters jumping on the trampoline and ask, “Dad, why can’t I do those things?” or crying in his bed at night “ asking “Why did I have to have this problem”, that makes me sometimes be at a loss for words and very choked up.  I have spent many nights lying awake praying and crying for him asking God to help him, deal with his unique dilemma. He is a very special boy to me he may never be able to do a touchdown dance or be a rock climber, but there is one thing he has and that is the heart of a angel.

*What is hemophilia?

Hemophilia is a congenital bleeding disorder. Its prevalence is estimated to be 30 to 40 per million inhabitants.

Patients with Hemophilia A have absent, decreased or defective production of the important blood clotting protein, Factor VIII.

Approximately 50% of hemophilia patients have moderate or severe disease and can require treatment for severe hemorrhages several times per month or a few times a year.

Hemophilia A

Hemophilia A is mostly confined to males. The disease may be passed on through their daughters. The daughter of a man with hemophilia will always be a carrier of hemophilia. Her sons will have a 50% risk of suffering from hemophilia and her daughters will have a 50% risk of being a carrier.

 

     As you can see having a son with hemopilia A can be a challange,but with a little faith and prayer, God will help us get through this. We take each day as it is given and keep moving forward, understanding that we all have to meet life’s challenges in confidence and courage and love.

Paul Huebner has been married for 19 years to his wife beth.They live in Michigan with there three childern and there dog named franklin. Paul has his owner of hgsadvertisement.com, an online hub for small bussinesses and groups with special events.

 

*sections from an article on Hemophilia taken from Novonordisk.ca

 


One Response to “A Dad, A Son, and Living With Hemophilia A”

  1. Pt says:

    My son has severe hemophilia and I can understand what you go through. Just stay strong and keep focus on the little things to try and make your son as normal as possible. Hemophilia affects our families in addition to our child. Sometimes the psychological impact is greater. We just need to dig deeper and find that strength.

    We have started with swimming to cultivate interest and have adjusted our lifestyle around our son.

    I hope and pray that all kids with hemophilia grow up as normal as possible and not let this disease limit their growth and aspirations.

    Just another dad

Leave a Reply

Your email address will not be published. Required fields are marked *

Time limit is exhausted. Please reload the CAPTCHA.